Bing Center Web Links

Web Link Amyloidosis Support Groups

The support we provide includes information resources from the medical community involved in the research and treatment of Amyloidosis.

Web Link Cold Agglutinin Disease

A support website by patients for patients with Cold Agglutinin Disease.

Web Link Dana Farber Cancer Care

A coalition of three Harvard afilliated hospitals: Dana-Farber Cancer Institute, Massachusetts General Hospital, and Brigham and Women's Hospital.

Web Link International Patient/Physician Summits on WM

This is the official website for the International Patient/Physician Summits on WM, which occur every two years. Our most recent Summit was March 2011 in Orlando, FL. This website contains the proceedings of each conference. Posted materials include Summit faculty biographies, abstracts, slide presentations, media galleries, sponsors, online DVD order form, and contact information for conference organizers.

Web Link International Waldenstrom's Macroglobulinemia Foundation

The IWMF provides a means for those with Waldenstrom’s Macroglobulinemia,  doctors and others with an interest in  the disease, to find mutual support and encouragement.  The IWMF provides information and educational programs that address patients’ concerns, and promotes and supports research leading to a cure.

Web Link NCI Familial Newsletter

Waldenstrom's Macroglobulinemia NCI Family Study Newsletter.

Web Link Steven P. Treon, MD, Ph.D

The official website for Dr. Steven Treon, Director of the Bing Center for Waldenstrom's Macroglobulinemia.

Web Link The European Waldenstrom's Macroglobulinemia Network

The EWMnetwork is intended to create an umbrella organisation for all European WM patient support groups or patient support organisations. The EWMnetwork was initiated by representatives of European patient organisations from Belgium, The Netherlands and UK in co-operation with the US based International Waldenstrom's Macroglobulinemia Foundation (IWMF). The EWMnetwork emphasizes exchange of information between WM patient support organisations and such questions as accessibility to treatment, medication, trials and stimulation of research on a European level.

Web Link International Workshops on Waldenstrom's Macroglobulinemia

This is the official website for the International Workshops on WM. These conferences seek to bring together researchers from across the globe to discuss the most recent breakthroughs in clinical and laboratory studies in this disease. The papers from the 5th International Conference in Stockholm, Sweden (October, 2008) were published in Clinical Lymphoma & Myeloma, March 2009. Abstracts from this conference can also be obtained from the WM Workshop Stockholm Abstracts section. The most recent conference was in August, 2012 in Newport, Rhode Island, USA, where research presented at this conference was published in the New England Journal of Medicine (NEJM). Please visit the WM Workshop Website for more information on all of our International Workshops for WM.

Web Link The Leukemia & Lymphoma Society

The definitive resource for information on blood cancers. Log on to find the latest news on disease characteristics, diagnosis and treatment, clinical trials, and breaking research findings.

Web Link The Waldenstrom's Macroglobulinemia Clinical Trials Group

The Waldenström's Macroglobulinemia Clinical Trials Group is comprised of over 20 major cancer centers around the world. Our mission is to maintain active clinical trials year round in an effort to constantly improve our understanding and continue to offer patients the most effective treatments for Waldenström's macroglobulinemia. By maintaining an extensive contingent of collaborating centers, we hope to be better able to enroll patients in our trials without delay. Not only does the WMCTG allow more convenient patient access to treatment, but will also facilitate completion of clinical trials in a more timely manner.

Web Link WM (UK) Support Group

This is a central point for information for UK members, newly diagnosed and other interested parties as well as UK doctors who we hope will eventually use this as a medium to inform WM suffers of ongoing research projects and clinical trails as well as any other information they wish publicized.

Web Link Von Willebrands disease

Von Willebrand's Disease (vWD) is the most common genetic disorder in the world (classic hemophilia is more well known due to its connection with the royal families of Europe). In fact, v vWD is one hundred times more common than classic hemophilia! It was discovered by a Finnish doctor in the 1920s, who named it after himself; later, Dr. von Willebrand discovered that the disease was linked to a missing blood factor, which assists with the clotting of blood. He named the factor after himself as well - von Willebrand's Factor (vWF). Unlike classic hemophilia, the disorder is not sex linked (autosomal), meaning that both men and women can have it, but some can be carriers only and not manifest any of the symptoms. VWD occurs when the body makes either inferior vWF or none at all. Other blood factors can be short-changed as well. Generally, vWD is divided into three types: Type I (mild), Type II (Medium) and Type III (severe). The lower the type, the less the symptoms will occur and the less strenuous they will be. Click on the following link: How I treat the acquired von Willebrand syndrome to download the May, 2011 publication on this topic.

Web Link Amyloidosis Foundation

The mission of the foundation is to increase education and awareness of amyloidosis within the community leading to earlier diagnosis and improved treatment. Our vision is to be a leading organization working to care for and cure patients with amyloidosis.

Web Link Lymphoma Research Foundation

The Lymphoma Research Foundation (LRF) is the nation’s largest non-profit organization devoted exclusively to funding innovative lymphoma research and providing people with lymphoma and healthcare professionals with up-to-date information about this type of cancer. LRF’s mission is to eradicate lymphoma and serve those touched by this disease.

Web Link Waldenstrom France

The Waldenström France Association was created in December 2009 to help every new Waldenström Francophone patient. With the approval of the IWMF, some members of our association translated the Torch newsletters and Booklets into the French language and so the WF association can provide information about Waldenström Macroglobulinemia in their own language through the bibliotheca of Its brand new website. The association made and printed a leaflet which was sent to all the hematologist centers in France in the first year of existence. The association organizes each year in Paris or Vienne a meeting with a session patient-doctor with the participation of the most important French WM specialists (in 2011 in Paris Véronique Leblond was the doctor for the session).


The association organize also some stages for its member to learn more about WM and research about this pathology. The association recently posted to its website many very interesting things for all francophone MW patients around the world. The association has a very active Talklist for all Francophone members (more than 153) from Canada, Belgium, Brazil, Switzerland, North Africa and France. We are a small association with no more than 85 members but a very active one to promote all kind of information about WM to help any new WM patients who are not fluent in English.

Web Link The Waldenstrom's Macroglobulinemia Community in Australia

This site represents a community of Australians who have faced diagnosis with WM - either personally or for a friend or loved one. Lymphoma is a continuing part of our lives. We have clear focus on Patient Outreach & Advocacy.

Web Link Rare Disease Communities - WM

Rare Disease Communities - Waldenstrom's Macroglobulinemia. Information, resources, discussions, links to other international patient & caregiver support groups.  This site contains a wealth of information regarding the ongoing efforts for treating and managing this disease all around the world.